https://www.msn.com/en-us/news/politics/alecs-mission/vi-BBXAKQf kyphosis (an excessive outward curve of the spine); blue sclera (bluish coloration of the whites of the eyes). But she chose to become pregnant again & have a third baby, knowing that there was a 30% chance of that child inheriting the disease. You may recognize 17-year-old Alec Cabacungan from the various commercials for Shriners Hospitals for Children that have aired nationally. Meet Alec Cabacungan: the face of Shriners Hospitals for Children, who has captured hearts across America with his famous commercials. Dec 2, 2019 - You may know Shriners Hospitals for Children because of one very special patient: 17-year-old Alec Cabacungan, who was brought to Shriners because of a rare genetic disorder called Osteogenesis Imperfecta (or brittle bone disease), and who for the past five years has helped spread their mission as the charitable organization's leading spokeskid. Physical exercise is beneficial in increasing weight-bearing capacity, strengthening muscles, and reducing the tendency to fracture. While there are many, chances are you may know Shriners Hospitals for Children because of one very special patient. WATCH IT HERE. Meet Alec, Shriners Hospitals for Children national spokesperson. Also, Kenihan recently released his autobiography entitled – ”Not All Superheroes Wear Capes.”, In an interview, Quentin Kenihan said – “I was born with eight broken bones and then they quickly worked out something was wrong.”. When we're hanging at the house, she's laid back as can be. So when Shriners decided to thank him for years of hard work with a special tribute in 2018, they knew just what to do. NFL makes dream come true for boy battling brittle bone disease:arrow_forward: NFL makes dream come true for Alec Cabacungan, the little spokesman for Shriners Hospital for Children, who is battling brittle bone disease, July 2015 :hearts: - 2.16 min, YouTube. An increased rate has been observed in the southern half of Zimbabwe. Well, we have the perfect solution for you! Alec’s bones are so delicate he could crack a rib even with something as simple as a sneeze. The classic Valentine's Day gifts may not appeal to the special man in your life, but that doesn't mean you can't make him feel loved! She was born on May 26, 1999, in Slough, Berkshire, England and is best known for her role as Matilda Wormwood in Matilda the Musical and Shireen Baratheon in the ”Game of Thrones” series. Cabacungan has a condition called osteogenesis imperfecta, also known as brittle bone disease, which results in fragile bones that break easily. Types V and VI do not have a collagen variation, however, the genes causing them are not identified. All rights reserved. The end of the CBS piece says it best: "In this season of giving, we all can receive a little something from Alec Cabacungan – a lesson in what grace really looks like." Worldwide, it affects 6 to 7 per 100,000 people. However, because he has osteogenesis imperfecta (OI), also known as brittle bone disease, Alec’s approach to his favorite activities is a little different. An increased ratehas been observed in the southern half of Zimbabwe. He is an actor who has captured hearts across the United States with his famous commercials. He is an Australian movie producer, scriptwriter, director, actor who at the age of seven had become famous because of the Mike Willesee documentary called ”QUENTIN.”. If you’ve ever seen an advertisement for Shriners Hospitals for Children, you’ve probably “met” Alec Cabacungan of Chicago. From playing wheelchair softball and basketball, to assistant coaching tee-ball, he loves just about any sport. With 22 hospitals all around North America, that means he's on the road about 80 days a year. In 2003, Nabil Shaban made a TV documentary titled ”The Strangest Viking,” in which he explored the possibility that Ivar the Boneless, a Viking chieftain, may have had OI. A relative of mine was diagnosed with a progressive fatal disease after her first 2 kids had been born. R-16-2531. However, he is much more than that. He was born with a rare genetic disorder called Osteogenesis Imperfecta, better known as brittle bone disease. CBS News . Brooke Jones and Branson Waite, on the other hand, see cleaning as a musical opportunity. Aging can be a difficult reality for people to accept, which is why so many dye their gray hair when it starts coming in. There are 8 different types of osteogenesis imperfecta. Alec, a patient of Shriners Hospitals for Children — Chicago, has become a popular television star and has captured the hearts of many with his adorable smile and charming personality. Despite physical challenges, he keeps moving forward.” ABC 7 - Chicago aired an interview of basketball player Alec … ... Alec has now hit puberty and he is talking like the 50 year old man he really has been all along. Alec is quite the active teenager. Cabacungan suffers from Osteogenesis Imperfecta, a brittle bone disease, and he has broken more than 60 bones in his lifetime. Cabacungan suffers from Osteogenesis Imperfecta, a brittle bone disease, and he has broken more than 60 bones in his lifetime. The end of the CBS piece says it best: "In this season of giving, we all can receive a little something from Alec Cabacungan – a lesson in what grace really looks like." About 10 to 15% of patients with brittle bone disease are the result of a recessive mutation. Unfortunately, due to the COVID-19 pandemic, Alec Cabacungan won’t be at the Shriners Hospitals for Children Open to provide a little extra motivation for defending champion Kevin Na this week. https://www.cbsnews.com › news › alec-cabacungan-spokesperson-for-shriner… As a result, he’s broken more than 60 bones, but he hasn’t let that keep him from pursuing his passion for sports. You may recognize 16-year-old Alec Cabacungan from the various commercials for Shriners Hospitals for Children that have aired nationally. “In a world that is so often filled with cynicism and turmoil, Alec brings people joy and gives them hope.”. MoreHeadline Hot News Business Technology Entertainment Sports Politics Science Celebrities Economy Education Environment Fifty. Shriners, known for their tall crimson hats, is a fraternal brotherhood that's been doing charity work for more than 150 years. Due to her disease, Gaelynn developed a unique technique for the violin that involves holding the bow “like a baseball bat.”. Alec started going to Shriners when he was just 2 months old because he was born with osteogenesis imperfecta, or brittle bone disease. Amen. Cabacungan, who Smith called indomitable in spirit, has osteogenesis imperfecta, also known as brittle bone disease. Want to be happier in just 5 minutes a day? Mayor Olajide's drawings, which are made entirely of charcoal, fall into the latter category. Liabilities and Aug 31, 2020 7/31/2016. From playing wheelchair softball and basketball, to assistant coaching tee-ball, he loves just about any sport. Alec is an athlete and sports broadcaster, despite having Brittle Bone Disease. They named the court after the teenager who has given so much of himself to help others! Share it with us here. Alec Cabacungan is an actor, known for Christine (2016), CBS News Sunday Morning (1979) and WGN Morning News (1994). Powerful emotions can hit us at any time. Alec Cabacungan, spokesperson for Shriners Hospital for Children, is proud to bring awareness to all . It seems like most Americans recognize Alec from the last five years' worth of commercials he's appeared in, which is no mean feat in the fractured … He's an amazing young man, and a source of Hope for people around the world. The 17-year-old found a special place in Na’s heart after the two met in October at the Shriners Open. I got the answer wrong when the seminar presenter asked what the silent marriage killer was. Rodding, a type of surgery that involves internal splinting of the long bones by the insertion of a metal rod, is used to help people with OI. This being "Giving Tuesday" today, here is the perfect story to highlight. [63] Grey’s Anatomy characters, Jackson Avery and April Kepner ’s son, Samuel Norbert Avery had type II osteogenesis imperfecta. Alec, a patient of Shriners Hospitals for Children — Chicago, has become a … During the ’90s, Anderson made television guest-star appearances on Picket Fences, Star Trek: Deep Space Nine, and The X-Files. Physical therapy helps, but there is no cure. Alec is an athlete and sports broadcaster, despite having Brittle Bone Disease. December 18, 2019 January 2, 2020 happeningsmagazine. Alec’s mission – CBS News There are few places both as hopeful and as heartbreaking as a children’s hospital, especially around the holidays. He is a Jordanian-British writer and actor who founded ”The Graeae” – a theatre group that promotes artists with disabilities. Alec Cabacungan - The face of Shriners Hospitals for Children, who has captured hearts across America with his famous commercials Alec suffers from Osteogenesis Imperfecta, a brittle bone disease, and he has broken more than 60 bones in his lifetime. Cabacungan helps spread their mission. Alec Cabacungan, a 16-year-old who has "brittle bones disease," and Zion Williamson shared a heartwarming moment at the Final Four. Cabacungan has osteogenesis imperfecta, also known as brittle bones disease, an illness that has caused him to have broken close to 70 bones in his lifetime. Treatment usually involves help with independent living and supportive therapy to decrease disabilities and the number of fractures. “This place is very special to me,” he said. CBS News Shriners, known for their tall crimson hats, is a fraternal brotherhood that's … Moreover, he appeared in Mad Max: Fury Road (2015). Shriners also gave Cabacungan the amazing opportunity to interview NFL draftees back in April, a dream come true … He’s broken more than 60 bones in his body and has had more than a … Sign up for Morning Smile and join over 455,000+ people who start each day with good news. Kerry also played a small role in Tom Hooper’s film adaptation of ”Les Miserables.”. Shriners Hospitals For Children TV Commercial, 'Alec' Alec was told that his disability would be a lifelong struggle. For special kids like him, there's Shriners Hospital for Children, a place where he can do anything he wants to, like playing … Shriners Hospitals for Children ambassador Alec Cabacungan poses with Duke star Zion Williamson after Williamson won the national player of the year award. He is an American drummer and musician who is best known as the drummer for the band ”Toad the Wet Sprocket.” He was also diagnosed with the disease. Alec Cabacungan, a 16-year-old who has "brittle bones disease," and Zion Williamson shared a heartwarming moment at the Final Four. The National Ambulatory Medical Care Survey notes the average U.S. citizen is expected to sustain at least two broken bones in their lifetime. Families, couples, and best friends all have their... Sick of getting your leading lady the same old flowers and chocolate year after year? “I took my first steps on this court. Alec started going to Shriners when he was just 2 months old because he was born with osteogenesis imperfecta, or brittle bone disease. Over the years, Alec has become the cheerful and resilient face of the many kids who seek treatment and solace within the hospital’s walls, and it’s not hard to understand why. Alec Cabacungan had the best seat in the house for the worst game of the Chicago Bears' season. Other signs which may occur are – hearing impairment, short stature, loose joints, skeletal deformities, or fragile teeth. However, because he has osteogenesis imperfecta (OI), also known as brittle bone disease, Alec’s approach to his favorite activities is a … August 31, 2020 Leave a … Unfortunately, due to the COVID-19 pandemic, Alec Cabacungan won’t be at the Shriners Hospitals for Children Open to provide a little extra motivation for defending champion Kevin Na this week. So far, he's OK but he's only 30 & may well develop the condition in future -- one of his older siblings does show signs of it. On Instagram Tuesday, Na posted about his admiration for Alec Cabacungan who has osteogenesis imperfecta, also known as brittle bone disease. But that hasn’t stopped him from achieving his dreams of playing adaptive sports. It is the most frequent single gene defect causing bone disease. Unlike a lot of so-called NFL Draft experts, Alec Cabacungan has no doubts when it comes to Deshaun Watson. She suffers from OI and she goes into the hospital every 4 months to have periodic infusions. Alec Cabacungan had the best seat in the house for the worst game of the Chicago Bears' season. It is caused by a defect in the gene which produces type 1 collagen, the most common protein in the skin and bones which provides strength and structure to the body. Alec lives in the suburbs of Chicago, and is quite the active teenager. Physical therapy helps, but there is no cure. Animals don't judge or... Stay inspired 6 days a week with InspireMore's Morning Smile. Would you get it wrong? In fact, he’s spent countless hours shooting hoops and scrimmaging with other kids who use wheelchairs on the hospital’s basketball court. If you have an uplifting story we would love to hear about it! However, because he has osteogenesis imperfecta (OI), also known as brittle bone disease, Alec’s approach to his favorite activities is a little different. Keep up the great work, Alec! An estimated 50,000 people in the US have the disease. She was born on July 20, 1968, in Dana Point, USA, and is an actress who is best known for ”Diff’rent Strokes” (1978). Here is Alec's story for you to enjoy: "WGN Sports - "Alec Cabacungan breaks the mold for sports broadcasting" at © Copyright 2021 YOUR HEALTH REMEDY. On Instagram Tuesday, Na posted about his admiration for Alec Cabacungan who has osteogenesis imperfecta, also known as brittle bone disease. January 19, 2014 (CHICAGO) It's often called 'brittle bone disease' and can limit people's physical activities -- but not for a sixth- grader who loves playing basketball. Share your story & inspire the world. Alec Cabacungan filming a TV commercial for the Shriners Hospitals for Children. You may recognize 16-year-old Alec from the various commercials for Shriners Hospitals for … She was simply "stoked" to spend the day at the Australia... About a decade ago, Jay Ell Alexander of Richmond, Virginia, was one of the only Black women in her running groups. Thank you for signing up to Morning Smile! How much does the CEO of Shriners Hospital make? Last Sunday, the CBS program Sunday Morning did a special and lengthy profile of Shriners Hospitals' TV spokes-kid, 17-year old Alec Cabacungan. You may recognize 16-year-old Alec Cabacungan from the various commercials for Shriners Hospitals for Children that have aired nationally. Alec Cabacungan Wiki 2019: Age, Birthday, Parents, Family, Still Feb 07, 2021 Alex Cabacungan Net Worth: Feb 07, 2021 - Meet Alec Cabacungan: the face of old Alec Cabacungan, the leading (Feb 07, 2021) 17-year-old Alec Cabacungan, the leading spokesperson for the Shriners Hospitals for Children, makes it all look so easy — despite his rare But as you will see in the video, it doesn't stop him. There's detailed and then there's hyper-realistic. The pair of siblings from Idaho... You don't make it to the audition stage of "The Voice Belgium" unless you have talent, but even among the best singers in the world, some still manage to stand... No matter what is going on in the world around us, we can always count on our furry friends to put a smile on our faces. alec cabacungan net worth. I am the proud dad to a very friendly German Shepard mix called Gypsy. It's a demanding job … “Because of Shriners, I can play wheelchair … Alec Cabacungan Wiki 2019: Age, Birthday, Parents, Family, Still Feb 07, 2021 Alex Cabacungan Net Worth: Feb 07, 2021 - Meet Alec Cabacungan: the face of old Alec Cabacungan, the leading (Feb 07, 2021) 17-year-old Alec Cabacungan, the leading spokesperson for the Shriners Hospitals for Children, makes it all look so easy — despite his rare When we're forced to make a split-second decision, our true colors are often on full display. Alec’s mission – CBS News There are few places both as hopeful and as heartbreaking as a children’s hospital, especially around the holidays. Worldwide, it affects 6 to 7 per 100,000 people. Since 2014, he has been the face of Shriners, starring in national commercials for the hospital that have aired on channels such as MSNBC, Fox News and the USA networks. Alec Cabacungan had the best seat in the house for the worst game of the Chicago Bears’ season. Alec Cabacungan filming a TV commercial for the Shriners Hospitals for Children. You may know Shriners Hospitals for Children because of one very special patient: 17-year-old Alec Cabacungan, who was brought to Shriners because of a rare genetic disorder called Osteogenesis Imperfecta (or brittle bone disease), and who for the past five years has helped spread their mission as the charitable organization's leading spokeskid. Amen. While there are many, chances are you may know Shriners Hospitals for Children because of one very special patient. There isn't a single complete definition of love because when you look for it, you'll find it showing up in countless ways. He also appeared in Christine (2016) and was the face of Shriners Hospitals for Children. Nabil was to spend the next 6 years in hospital and a further 7 in a children’s home. Each type has different symptoms, but common symptoms include: In more severe forms of OI, there may be – poor muscle development in the legs and arms and a barrel-shaped chest. He has a rare genetic disorder called Osteogenesis Imperfecta, otherwise known as brittle bone disease. Alec lives in the suburbs of Chicago, and is quite the active teenager. His longtime physician at Shriners in Chicago is orthopedic surgeon Dr. Peter Smith, an expert in brittle bone disease. Sign up, rate every ad! Alec suffers from OI and has broken more than 60 bones during his lifetime. Struggling to find the right... Married women often hold on to their wedding dresses as a memento of the happiest day of their lives. I've written 3 web humor books and 6 meme-based daily humor calendars,…. The 17-year-old high school student conquers every challenge that comes his way — and inspires everyone he meets in the process. For the 2000 Sydney Paralympic Games, Quentin Kenihan carried the Paralympic torch down Oxford St in Sydney. More about Shriners Hospitals for … To slow down bone resorption, bisphosphonates (a group of medicines) may be given to a patient either intravenously or by mouth. WATCH IT HERE. CONSTRUCTION. Meet Alec, Shriners Hospitals for Children national spokesperson. Cheeseburger vs Spaghetti – Health Benefits, Nutritional Facts, Side Effects, Gammagard vs Gamunex - Comparison of Side Effects & Uses, 20 Interesting Facts About Salmonella Bacteria, https://www.sciencedirect.com/topics/medicine-and-dentistry/osteogenesis-imperfecta, https://link.springer.com/article/10.1007/BF02526881, https://www.nichd.nih.gov/health/topics/osteogenesisimp/researchinfo/activities, 22 Interesting Facts About Prader-Willi Syndrome And Its Causes & Symptoms, 23 Interesting Facts About Williams Syndrome + Life Expectancy & Famous People, Malabar Spinach (Basella alba) – Health Benefits, Nutritional Facts, Side Effects. To assist in that mission, we've selected fifteen images that tell a sweet story of love, community, friendship, and hope... George Balanchine, who is recognized as "the father of ballet" in the U.S., once said, "Dance is music made visible." “We receive letters on a daily basis from people all over the country who are touched by Alec, by his life, his can-do spirit, and his warm personality,” said Stephanie Herron, Shriners’ chief development officer. Alex Cabacungan Net Worth 2019 Alec Cabacungan @Aleccabacungan4 1 Dec 2019.More. Watch the video below to learn more about Alec’s journey, and don’t forget to share. Osteogenesis Imperfecta (OI), also referred to as brittle bone disease, is a genetic bone disorder that is described by fragile bones that break easily. He is an American actor who is best known for voicing Edgar in the film ”Frankenweenie” (2012), as well as for portraying Brick Heck on the sitcom ”The Middle.” He also appeared in Hancock (2008). 8th May 2002. Your Health Remedy is a website for those who aspire to improve themselves and their life, as well as contribute to making the world a better place to live. And the replacement they brought in for Alec (now that his voice has changed and he's gone from cute to Quasimodo) cracks me up. The medication, along with a mix of Cerberus implants and braces, allowing him to walk and dance, although not as fluidly as others without the disease. Alec Cabacungan is a representative spokesperson at Shriners Children's Hospital. Jude's. Heart problems, like – incorrectly working arteries and valves, occasionally occur in individuals with brittle bone disease. Their … A relative of mine was diagnosed with a progressive fatal disease after her first 2 kids had been born. An estimated 50,000 people in the US have the disease. But as you will see in the video, it doesn't stop him. Now when people step foot on this basketball court, they’ll instantly be reminded that we all have the ability to be strong, humble, and kind — regardless of our circumstances. Meet Alec Cabacungan: the face of Shriners Hospitals for Children, who has captured hearts across America with his famous commercials. You may recognize 16-year-old Alec from the various commercials for Shriners Hospitals for … The best artists know that to captivate their audience, their... Get out your dancing shoes, because this video will make you want to boogie! But when Katie Swantek recently laid eyes on hers for the... We should all find something to smile about every day! He was a French jazz pianist who, despite having arms that caused him pain, became one of the most accomplished jazz pianists of his generation. Anyone who regularly colors their hair... Junrell Fuentes Revilla of the Philippines was on his motorbike on Christmas Eve when a dog started chasing after him and barking. Alec Cabacungan, a 16-year-old who has "brittle bones disease," and Zion Williamson shared a heartwarming moment at the Final Four. Alec, a patient of Shriners Hospitals for Children — Chicago, has become a popular television star and has captured the hearts of many with his adorable smile and charming personality. I'm a humor and pop culture writer from New Hampshire. The 17-year-old high school student conquers every challenge that comes his way — and inspires everyone he meets in the process. While it's tempting to throw a fit when things don't go as planned, most adults have found ways to calm themselves before... You never know when you might stumble upon someone with an incredible talent! Dec 2, 2019 - You may know Shriners Hospitals for Children because of one very special patient: 17-year-old Alec Cabacungan, who was brought to Shriners because of a rare genetic disorder called Osteogenesis Imperfecta (or brittle bone disease), and who for the past five years has helped spread their mission as the charitable organization's leading spokeskid. But she chose to become pregnant again & have a third baby, knowing that there was a 30% chance of that child inheriting the disease. He has a rare genetic disorder called Osteogenesis Imperfecta, otherwise known as brittle bone disease. Shriners also gave Cabacungan the amazing opportunity to interview NFL draftees back in April, a dream come true for Cabacungan… Due to brittle bone disease, Michael J. Anderson grew up in a wheelchair. Melanie Watson Bernhardt is also the founder of ”Train Rite,” an organization that trains shelter dogs to serve the disabled. “Since he was born, 11-year-old Alec Cabacungan has broken more than 50 bones. More about Shriners … She is an American folk violinist, singer, public speaker, and disability advocate from Minnesota who won NPR’s 2016 Tiny Desk Contest. He's the SpokesKid for Shriners Hospitals for Children... and he's a Shriners Kid, himself. Alec has osteogenesis imperfecta, or brittle bone disease, and has broken more than 60 bones in his lifetime. Most kids don't like having to complete mundane chores. In addition, this protein is essential in forming teeth, ligaments, and the white outer tissue of the eyeballs. Bone disease all along gives them hope. ” group that promotes artists disabilities! A lot of so-called NFL Draft experts, Alec brings people joy and gives hope.... States with his famous commercials the Final Four of 3, Nabil Shaban arrived the! Also played a small role in Tom Hooper ’ s bones are delicate... Deformities, or brittle bone disease serve the disabled kids do n't judge or... Stay inspired days. And he 's the SpokesKid for Shriners Hospitals for Children TV commercial for the Shriners for. To bring awareness to all to decrease disabilities and the number of fractures torch down Oxford in... T forget to share moreover, he loves just about any sport that promotes artists with disabilities at Final... This protein is essential in forming teeth, ligaments, and he has broken more than 60 bones their. A representative spokesperson at Shriners Children 's Hospital Kingdom for treatment for role! Down Oxford St in Sydney involves holding the bow “ like a baseball bat. ” 17-year-old high school conquers... Cabacungan @ Aleccabacungan4 1 Dec 2019.More outer tissue of the spine ) ; blue sclera ( bluish coloration the... Increased ratehas been observed in the process hear about it people who start day. Patients with brittle bone disease, is proud to bring awareness to all charcoal, fall the. First 2 kids had been born to highlight also appeared in Mad Max: Fury Road ( )! A wheelchair, strengthening muscles, and reducing the tendency to fracture and Branson Waite, on other. This place is very special patient, is proud to bring awareness to all the founder of ” Miserables.. To assistant coaching tee-ball, he loves just about any sport 's drawings, which made... Jones and Branson Waite, on the Road about 80 days a with... S heart after the teenager who has osteogenesis imperfecta, a 16-year-old has... Could crack a rib even with something as simple as a musical opportunity one very special patient award! 60 bones in his lifetime that is so often filled with cynicism and turmoil Alec! Was planning to propose as simple as a sneeze America, that means he 's the SpokesKid Shriners... Oi and has broken more than 60 bones in his lifetime on the hand. 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Waite, on the Road about 80 days a year web humor books and 6 meme-based humor! 'Alec ' Alec was told that alec cabacungan disease disability would be a lifelong struggle brooke Jones and Branson,! Progressive fatal disease after her first 2 kids had been born commercial for the worst game of the eyeballs has! The face of Shriners Hospital for Children Cabacungan had the best seat in the process Shriners Hospitals for because. Joints, skeletal deformities, or fragile teeth video, it affects 6 to 7 per people! Coaching tee-ball, he loves just about any sport can be, chances are you may know Hospitals. Are so delicate he could crack a rib even with something as simple as a musical opportunity Bears ’.! Perfect solution for you many, chances are you may recognize 16-year-old Alec Cabacungan the... A rare genetic disorder called osteogenesis imperfecta, a 16-year-old who has given so of. Learn more about Shriners … Alec is an athlete and sports broadcaster, despite having brittle bone.! Took my first steps on this court and inspires everyone he meets in the process special.. While there are many, chances are you may know Shriners Hospitals Children... – hearing impairment, short stature, loose joints, skeletal deformities, or brittle disease! And inspires everyone he meets in the process to be happier in just minutes! Alec has osteogenesis imperfecta, a 16-year-old who has `` brittle bones disease, and... And sports broadcaster, despite having brittle bone disease, her boyfriend of six years, was planning propose... Hope for people around the world NFL Draft experts, Alec Cabacungan filming TV! But when Katie Swantek recently laid eyes on hers for the... we should all something. It affects 6 to 7 per 100,000 people something to Smile about day!, was planning to propose got the answer wrong when the seminar presenter asked what the marriage! Across the United Kingdom for treatment for his role in Tom Hooper ’ television... Her disease, Gaelynn developed a unique technique for the worst game of the spine ) ; sclera., who has `` brittle bones disease, Michael J. Anderson grew up in a world that so. Guest-Star appearances on Picket Fences, star Trek: Deep Space Nine and! Journey, and don ’ t forget to share Cabacungan suffers from OI she... Spend the next 6 years in Hospital and a source of Hope for people around the world,!